Essential Resources for Parents of Medically Complex Children in Florida

You’re not alone in your child’s care journey. Discover Florida’s top resources to support your family today!

You’re not alone in your child’s care journey. Discover Florida’s top resources to support your family today!You're already an expert in your child's care. Every day, you manage complex medical needs, coordinate appointments, and ensure your child gets the best possible care. But even experts need support, and Florida offers numerous resources to help you provide the outstanding care your child deserves.

This guide puts the power of knowledge in your hands, connecting you with resources that can make your journey easier and help your child thrive.Navigating all these resources can be confusing at first—but don't hesitate to contact our team for guidance on where to begin and how to access the support your family needs.

Understanding Your Care Options

Children's Medical Services (CMS)

CMS connects you with specialized healthcare providers who coordinate with each other to support your child's care plan. Their network includes dedicated physicians, nurses, and social workers who ensure comprehensive care delivery. Contact them at 800-226-2604 or visit www.cms-kids.com.

Early Intervention Through Early Steps

Early Steps provides free services for children under three years old with developmental concerns. They offer evaluations, therapy services, and family training, all delivered in your natural environment. Contact Early Steps at 800-218-0001 for support.

Medical Daycare Support (PPEC Centers)

Prescribed Pediatric Extended Care (PPEC) centers like Spark Pediatrics provide skilled nursing support while promoting child development. They offer expert nursing care, integrated therapy services, and social interaction opportunities. Spark Pediatrics specializes in personalized care plans and bilingual services, with most services covered by Medicaid.

Building Your Educational Support Team

Florida Diagnostic & Learning Resources System (FDLRS)

FDLRS partners with families to ensure children receive appropriate educational support through screenings, resources, and parent training. Contact FDLRS at 850-245-0478 or visit www.fdlrs.org.

Technical Assistance & Training System (TATS)

TATS supports pre-K programs serving children with disabilities through technical assistance and quality program development. Visit tats.ucf.edu for resources and support.

Family Support Networks

Family Network on Disabilities (FND)

FND empowers families through advocacy training, educational workshops, and support group connections. Contact them at 800-825-5736 or visit fndusa.org for assistance.

Florida Alliance for Assistive Services and Technology (FAAST)

FAAST helps families access necessary adaptive equipment and technologies through their statewide device loan program. Reach FAAST at 850-487-3278 or visit www.faast.org.

Financial & Insurance Resources

Florida KidCare

Florida KidCare provides quality, affordable health and dental insurance for children from birth through age 18, with free or low-cost coverage options. Apply at 1-888-540-KIDS or through www.floridakidcare.org.

Medicaid Disability Coverage

Florida Medicaid covers essential services including medical equipment, home health care, therapy services, and medical transportation. Visit www.myflfamilies.com/medicaid for eligibility information.

Therapy & Intervention Services

Early Steps Early Intervention

For children under age 3, Early Steps provides physical, occupational, speech, and developmental therapy at no cost to eligible families. Contact Early Steps at 800-218-0001 for evaluation.

Children's Multidisciplinary Assessment Team (CMAT)

CMAT offers comprehensive evaluations and care coordination for children with complex medical needs, connecting families with appropriate services and supports.

Additional Resources

Disability Rights Florida

This organization provides advocacy services, legal assistance, and educational resources for individuals with disabilities. Contact them at 800-342-0823 or visit www.disabilityrightsflorida.org.

Transportation Assistance

Many counties offer specialized transportation services for medical appointments through their Medicaid transportation benefit. Contact your local Medicaid office for information about services in your area.

Taking Action: Your Next Steps

  1. Create Your Care Plan
    • Document your child's current medical needs and treatments
    • List your questions and concerns
    • Gather your child's medical records
  2. Build Your Support Network
    • Contact CMS to explore care coordination options
    • Connect with family support organizations
    • Join local parent groups through FND
  3. Explore Financial Support
    • Apply for Florida KidCare or Medicaid
    • Investigate additional financial resources
    • Connect with insurance navigators

Remember: You're already doing an amazing job caring for your child. These resources aren't replacements for your expertise—they're tools to help you provide the best possible care while maintaining your own well-being.

Need immediate help finding local resources? Dial 2-1-1 to connect with your local United Way resource helpline. They can connect you with additional services and support in your community.

You know your child best. For personalized guidance on coordinating these resources and creating a comprehensive care plan that works for your family, schedule an appointment with our experts. We can help you use these resources to build a support system that works for your family's unique needs.

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